Update Wednesday Nov 12 10AM

Tuesday was a good day for Aaron. TBI (Traumatic Brain Injury) is often described as a “roller coaster ride through hell”, which I find to be highly appropriate. I met with Aaron’s neuropsychologist, who has deemed Aaron to be functioning at a Rancho Level of 5 – Confused; Inappropriate Non-Agitated; Maximal Assistance. Aaron’s memories are still floating in and out and he doesn’t respond well to verbal instructions. Aaron’s agitation level increases as the day goes on. I spoke with staff members about this and one theory may be Twilight Syndrome or Sundowner’s Syndrome, which commonly afflicts dementia patients.

Aaron sat in his wheelchair for four hours, a big deal for him, and went for a tour of the rehab unit. This is the first time he has been out of his hospital room in the last 4.5 weeks. He still has the MRSA infection, and has to wear the gown, mask, and gloves when he leaves the room. He’s also still dealing with the respiratory issues. Aaron still has decreased swallowing abilities but his trach has been downsized to a Montgomery Long-Term Cannula (Montgomery Button). The Montgomery Long-Term Cannula is a stoma button designed to replace the tracheostomy tube. This is more comfortable for Aaron and he tries to speak a bit more, though still rather incomprehensible.

- Tedi

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One Response to “Update Wednesday Nov 12 10AM”

  1. 1
    Dana Says:

    Tedi, thanks for the updates and good medical links. It’s very helpful to get a better picture of Aaron’s condition. You’re a rock, girl. Stay strong.

    I’m headed over to Macau tonight to keep my eye on your brother! :)

    -D